On the Road Again ….. and slightly out of my mind

Today was a struggle.  You don’t realize how much you rely on the environment, the sort of external framework you’ve created to support you……….. until it’s not there.

 

View from my balcony, early light

 

There are mornings when I awake with a headache, and it’s more or less clear what I need to do about it.  Then there are days when I get up to a state, not of pain, but of a strange sort of confusion.  I can’t remember where I’ve put things, whether I’ve taken my morning meds, what I was about to do, much less make a plan for the day or carry out the plan that’s already in place.

Continue reading “On the Road Again ….. and slightly out of my mind”

Chronic migraine brings big changes: how do we deal?

Changes

  1. Retired early.  I miss my students and the intellectual challenge.  I feel like I’m out of loop – in some sort of railway siding, waiting for the next step which is unknowable.
  2. Fatigue and more fatigue
  3. Chronic pain and never knowing if you’ll be able to follow through on plans
  4. Tachyphylaxis:  diminishing response to successive doses of one medication after another rendering them less and less effective over time.
  5. Too much emphasis on doctors and other professional helpers = an interruption to life.
  6. My beautiful son has inherited my migraine gene.

Continue reading “Chronic migraine brings big changes: how do we deal?”