Home Infusion with peripheral IV

The Set-up

Here’s whats going on.  My episodic migraines have once again morphed to essentially daily headaches.  I put up with this for a couple of months hoping for the best.  You know ……… against all odds, this nasty shit will just slither away under the same door it snuck in.  But of course that hasn’t happened, so I heaved a big sigh and made an appointment with my ever-patient headache specialist.

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Livin’ the Life …….. with migraine

To prevent or reduce frequency and severity of headaches:

Nail parlor.  A smelly place.  Don’t go there!
Puerto Vallarta, Mex. during the Day of the Virgin de
Guadalupe.  Crowded and noisy but outside.  I can
tolerate crowds for a little longer outside.
  1. I ……. eat regularly, always carry food (fruit and nut bars) and water
  2. Eat good “clean,” real food, very little packaged stuff.
  3. BREATHE! I don’t do this too well.  I tend to take little tiny breaths, and then, when I can’t stand it any longer and am beginning to turn just slightly blue around the lips, a big gulp of air.  Not good.  You can do better.
  4. Always carry abortive and pain meds with me.
  5. Always carry earplugs, sun glasses and/ or specially tinted lenses available from http://www.axonoptics.com and https://www.theraspecs.com
  6. Always carry a neck pillow in the car, plane, train, etc.
  7. Exercise: walking and yoga regularly, swimming and biking whenever possible.
  8. Rest when I need to.  I believe in naps when you need them – though not all the time.
  9. Communicate: blog, talk w/ my friends, husband, sons, etc. Keep in touch.
  10. Keep in touch w/ my son who also has serious migraines; although, thankfully, they’re not as bad as mine.  We share tips.
  11. Avoid loud, noisy, densely packed situations.
  12. Avoid “smelly” places (cigarette smoke, chlorine, nail parlors, chemical fumes of any kind).
  13. Limit screen time and choose to watch TV, movies, etc. that don’t over stimulate me.  Use tinted lenses.
  14. Schedule my life’s activities to suit my tolerance level.
  15. Try to pay attention and be aware of how I’m feeling so I don’t wait until things get bad to “take action.”  Don’t beat myself up if I don’t “get it right.”
  16. Make regular visits to my mental health therapist to help me unload and come up with new ideas.
  17. Continue to do things that are really important to me and that I enjoy:  art, taking care of my grandson, hanging out with friends and family, traveling, spending time in sunny places, reading good books, spending time outdoors.

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Heading South – on foot.

The fantasy

I have a plan.  Now.  For some time I’ve had a rich fantasy of walking off this nagging, chronic illness I have.  Last year, I began to plan how I might accomplish a long-distance walk.  Just open the door and head south, always south with no particular goal in mind, just the pure joy of walking, the feeling of being “on the way” and on my own two feet.  I have no desire to walk the Pacific Crest Trail nor to undertake any such rigorous, cross-country, mountainous trek.  Back roads, bike trails and streets of small towns and large if it comes to that, are my preference.

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The Visible and Invisible Me

The most difficult thing for me about having chronic headache disease – and being close to people – is what they don’t see or, perhaps, what I have not yet learned to share.  They do ask how I am or how I’m doing, but it tends to end there or with an expression of sympathy.   And I don’t follow up with more specifics, what’s going on with me day to day.  I don’t know how to bridge this gap without dragging things down into a kind of hole.  And I have good friends, who are good people, whom I value highly.

Half Seen

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Ears and Earphones: These things should come with a WARNING!

Noise is a big trigger for me.  I carry earplugs everywhere.  Power tools, ubiquitous TV in airports, incessant advertising when you’re placed on hold during phone calls, music in stores, loud concerts or movies all are annoying and will eventually give me a headache if the noise persists or I can’t get away from it.  SO…….. my ever-thoughtful husband gave me a great Christmas present, a new pair of Bose, noise-canceling headphones – delivered to me before we took our annual Dec. trip to Mexico.  I was stoked!

under PRESSURE!

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New Year, New Beginning

Yellow Hibiscus

I’m looking forward to the possibilities of this just-arrived year with a new sense of relief and lightness.  I have finally, not without some regret, retired from my job.

I have loved teaching English as a second language to immigrants for the last 11 years, and my heart will miss my students.  This last quarter was a good one, a great group of people, so I was able to finish on a high note, knowing I was still doing a good job. Continue reading “New Year, New Beginning”

Traveling w/ my achilles heel(s)

Presently, it so happens, a friend and I are in Santa Cruz, CA house sitting for my son for a few days, exchanging the cold drizzle of northwest Washington for crisp, sunny, Santa Cruz fall days.  This trip has been especially trying because not only am I dealing with daily migraines, I am also hobbling around, literally, with constant pain of achilles tendonitis.  But I refuse to stay home even though it would, no doubt, have been easier.

It takes a huge amount of determination sometimes to just go ahead, make plans, and carry them out even if I’m not feeling at all sure I can actually pull it off.  But I have, once again, set forth, in spite of everything.  And I’m not sorry. Continue reading “Traveling w/ my achilles heel(s)”

Grateful for what i SEE

These last 10 days have been verrrrry difficult.  I am on a, so called, drug holiday from methergine, which comes around every 6 months like clockwork.  I’ve been through this before, but this time I am also taking Venlafaxine (generic for Effexor) which has not been a good medication for me.  I’ve had a paradoxical reaction, which means for me it has heightened my anxiety and hypersensitivity to all sorts of perceived negative stimuli.  This was all somehow offset somewhat by the methergine.  Since I discontinued the methergine, I have been unable to sleep more than 4 or 5 hours a night.  I am strung out on the one hand, like I’ve had too much coffee, and drooping from fatigue on the other.  Needless to say, this is driving me CRAZY!!!! Continue reading “Grateful for what i SEE”

FRUSTRATION!!!

I have come to the point in my life where I usually face my headaches and associated symptoms,  fatigue, drugs, side effects and more with some level of equanimity or at least resignation – for good or ill.  My therapist thinks I should cry more, but I just rarely do.

My left funky foot

However, the last few days combined with the last 3 months of foot trouble have left me gnashing my teeth in frustration, crazy with irritability, pissed off at my doctor and yesterday, definitely on the verge of tears. Continue reading “FRUSTRATION!!!”